When I woke up in the morning Kayla wasn't doing much better than the night before. Her heart rate was lower, but she still had JET and was not very responsive.
The doctors changed her medication and by the afternoon her heart was back to a normal rhythm! The bad news: this new medicine will need to be taken for a long time. I am not excited with the growing list of daily medications she is going to be on. Another EKG was taken to check for any additional problems. The doctors noticed that the extra electrical activity in her heart which couldn't be fixed during the EP study was gone as well!
This was a very scary bump on the road to recovery and I am glad it is over. Kayla is still very sleepy and not happy. I hope that tomorrow she will start talking and walking again. The doctors want to watch her for a few more days to make sure the medication levels are correct. We pray that there are not any more problems.
We are slowly figuring out how to give Kayla her meds. Tonight Chris got all the meds to stay in with no crying.
- 1 pill cutter
- 1 pill crusher
- 1 pill cup
- 1 spoon
- 2 measuring tubes
- 1 bendy drinking straw
- 60 milliliters of vanilla milk shake
- 20 milliliters of chocolate milk
- 15 milliliters of apple sauce
- 1 blue vomit bag (in case it all goes wrong)