20 March 2011

Kayla's Heart

Thanks to Nanette at www.HeartBabyHome.com for drawing this picture of Kayla's heart!

  • Atrial Septal Defect (ASD) [septum=wall between the chambers of the heart, atriums=top chambers of the heart] – holes in the inner walls of the heart allowing extra blood flow between the two upper chambers of the heart (atriums).
  • Double Outlet Left Ventricle (DOLV) [outlet=passage for exit, ventricles=lower chambers of the heart] – both vessels (aorta & pulmonary artery) carrying blood away from the heart come out of the left ventricle. (Normally the aorta carries oxygen-rich blood from the left ventricle and the pulmonary artery carries oxygen-poor blood from the right ventricle).
  • Hypoplastic Right Ventricle (HRV) [hypo=under, plasia=formation or development, ventricles=lower chambers of the heart] The right ventricle is under developed. It is too small. This means the heart will have to work harder and won’t last as long. Sometimes the valves entering or leaving the right ventricle are also too small or missing.
  • mild Pulmonary  Stenosis [pulmonary=having to do with the lungs, stenosis=narrowing of a passage] – a narrowing of the pulmonary artery (which carries blood from the heart to the lungs) at or near the pulmonary valve.
  • Transposition of the Great Arteries (TGA) [transposition=switch the order, great arteries=the aorta & the pulmonary artery] – the positions of the great vessels are switched so that the aorta (which carries oxygen-rich blood to the body) is closer to the oxygen-poor blood AND the pulmonary artery (which carries oxygen-poor blood to the lungs) is closer to the oxygen-rich blood.  It is usually accompanied by a hole in the wall between the ventricles (ventricular septal defect or VSD).
  • Tricuspid Artesia (TA) [atresia=absence of a normal opening] the valve that controls blood flow between the right atrium and the right ventricle in the heart is missing or fused shut.
  • Ventricular Septal Defect (VSD) [septum=wall between the chambers of the heart, ventricles=lower chambers of the heart] – holes in the inner walls of the heart allowing extra blood flow between the two lower chambers of the heart (ventricles). This causes the oxygen-rich and oxygen-poor blood to mix before leaving the heart.

17 March 2011

6 Weeks Post Op!

So it's been 6 weeks since Kayla had her open heart surgery.  I'm excited that we can now lift her up under her arms and we can do tummy time.  I had been worried that since she has had basically no tummy time since she's been born that it would take a while for her to lift her head, roll over, etc.  Well I put her on her a tummy a couple days ago and she immediately lifted her head up high!  I was so amazed and proud of my girl.  Today I put her on her tummy and she rolled over for the first time!!  I'm glad I can start doing more stuff with her now and she's starting to learn what she can do.  She's such a happy girl.  She has also gained a pound since my last posting, so I'm not as stressed about her weight gain anymore.  Yay!

 Her scar is pretty much healed.  The scab at the very bottom finally fell off yesterday and now it's indented...
Rolling over from her tummy to her back for the first time!

03 March 2011

Check Ups This Week

Kayla had her first post op check up with the cardiologist in Little Rock at the clinic.  I keep forgetting to take a picture of her with the cardiologist.  Kayla is doing great.  She doesn't have to take Enalapril anymore for her high blood pressure.  They did an echo and said she doesn't have any more fluid around the heart, so she only has to take Lasix once a day until next week.  We're excited about taking less medications!  They didn't seem too concerned about the lack of weight gain.  Some babies lose weight after surgery, and it takes a few weeks to start gaining back.  They suggested starting her on cereal to get more calories.  The next visit to see a cardiologist will be in 3 months and we'll get to go to the Lowell clinic that is close to us.

Kayla also had her 4 month check up with the pediatrician.  
Weight 11 lbs 8 oz, Height 22.5 inches, Head Circumference 38.25 cm

He was a little more concerned about her weight gain and said we would need to see him again next month for a weight check.  If she isn't doing better, he said we might have to get some high calorie stuff to mix with the breast milk for her.  However, he said gaining too much weight could also be a sign of heart failure.   I guess that's why the cardiologist didn't seem that concerned about her weight gain. 
She also had her 4 month shots and the Synagis shot.  She was fussy afterwards and went to bed that night a lot earlier than she normally does.
 Since we moved the David to his new train bed, we moved the mattress up on the crib and put the mobile in for her.  She's not sleeping in the crib yet.  I tried to get her to nap in it once, but she kept waking up.  She stays asleep longer in her swing for naps.
 She likes to play with her hands a lot.
 I only put bows on her for pictures.  :)
Lately, she's been sticking out her tongue a lot.  :-p